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Persistent migraine aura symptoms (e.g. visual snow) Persistent migraine aura symptoms (e.g. visual snow)
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Symptoms

Transitory aura symptoms

Persistent aura symptoms

Psychological experience

Author: Klaus Podoll, Markus Dahlem, Sofia Greene 26. April 2007
Edited by: Klaus Podoll, Markus Dahlem, Sofia Greene

Persistent migraine aura symptoms (e.g. visual snow)

Sofia Greene [subject #1], Afterimage, 2006. © 2006 Sofia Greene

I hope that we can all join together and beat this...

"Hi All,

Well, it is really upsetting reading all this, I'm in fact in tears, but am also happy to have found people who have similar problems. First I would like to say I hope that we can all join together and beat this, because there is no way I'm putting up with this shit for much longer...

Here is my problem:

I started getting migraines in November 2004, I didn't know what it was because it was just the visual disturbance - just zig-zags and a few other bits. Then, three more with headache (a-ha migraine) and visual disturbance quite bad. My third one was quite crazy and I had problems with my vision for a whole week - seeing something and then seeing it again. My fourth migraine February 2005 had really mad aura - skipping lights, things seeming to melt, zig-zags and finally kaleidoscopes spinning and skipping in fours. So scary! Then nausea, then Sumatriptan, then fucked up vision that has not really gone away.

Vision proplem: I look at something, turn my head and then see it again. Or I am looking at something, move it and still see it where I moved it from (the longest an image has remained in my sight is 8 seconds). I am having biggest problems watching tele and driving. Am hyper aware of reflections and shadows, problems looking at the sky - sort of turns into stars, also looking at white walls. (Sunglasses do help on computer.) Feel overall confused, disoriented, less coordinated, and really upset about this as am active person with pretty good health until now. (Had some tingling in back of head.) (Had MRI and results were normal.) Did sort of think stroke at one point.

So, I hope that a doctor will read this and have the proper diagnosis and solution, and if not I hope that all the people that are having this problem can get together and come up with something. I would love to hear more. Thanks everbody for discussing this.

Best, Sofia"

(Sofia [subject #1], Brain Talk Communities – Specific Neurological Conditions (M-Z) – Visual Impairments - HELP!! Visual disturbances drive me crazy!, March 29, 2005)

ohCRICKETS [subject #433], Visual snow or static, 2007. © 2007 ohCRICKETS [more]

Dion Shore [subject #386], Persistent closed-eye hallucinations, 2007. © 2007 Dion Shore

Click to Peer Out At My Within

"Click to peer out at my within. With closed eyes, I may see 'The Sandbox' - this is a small patch of vision that resembles a field of sand particles drifting past my vision. They're almost always moving, and they can drift in any direction either on their own, or I can 'steer' them. Again there are green, red, yellow and blue 'sparklies' - these look like confetti - just a few bits of luminous confetti trickling towards me from some point in the distance. The colors of the sparklies come in pairs - they'll either come in red/blue pairs, or yellow/green pairs. Meaning if I see a yellow sparkly, a green one is usually also nearby and/or soon to follow, and if I see a red one, a blue one is also nearby and/or soon to follow, and vice versa."

(Dion Shore [subject #386], Email to Klaus Podoll, August 12, 2007)

Jochen [subject #320], Visual snow, 2007. © 2007 Jochen

Diagnostic work-up of persistent perception disorder/persistent aura without infarction (for more information see here)


Obligatory tests:

Ophthalmologic examination
Neurological examination
Psychiatric examination
Thorough headache history and family history
Thorough drug history (including illegal drugs, especially hallucinogens: LSD, Ecstasy, mushrooms, other?)
CAT or MRI of head

Facultative tests:

EEG
Evoked potentials
Routine blood work
Lumbar puncture (spinal tap)

Unnecessary for individual diagnostic purposes:

SPECT
PET
fMRI
qEEG

kydjg, Snowy Vision (Visual Snow), December 14, 2008. © 2008 kydjg (see here)

eithero, 100% Chance of Visual snow, June 22, 2009. YouTube "Video diary on my existence with a specific focus upon a condition currently without a diagnosis." © 2009 eithero (see here)

eithero, 100% Chance of Visual snow 2, June 24, 2009. YouTube "Another chapter in my existence." © 2009 eithero (see here)

References

Gordon GE, Manahilov V, Dutton G, Shahani U, Simpson W. Seeing the bigger picture: Evidence for altered global motion processing in migraine. Perception 2007; 36 (ECVP Abstract Supplement): 140. [PDF]
Podoll K. Musical palinacousis as an aura symptom in persistent aura without infarction. In: Rose FC (ed) The Neurology of Music. Academic Press, London 2008 (in press)

Acknowledgment: We wish to thank Jane10 (subject #23) for her assistance in this project by proof-reading and editing the webpages of this section of the website.

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